Author Topic: Dr Alan Hakim - Gut problems in EDS  (Read 882 times)

Emmerson Elliot

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Dr Alan Hakim - Gut problems in EDS
« on: September 04, 2015, 03:12:01 AM »

Common bowel problems in JHS and EDS

Posted By Paul Gardener, June 9, 2013
This article is written for patients, the public, and health professionals.

Here Dr Hakim, Chief Medical Advisor describes both the common and more rare complications of bowel problems in Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (EDS), their investigation, and treatment.

Over the last 5-10 years medical professionals have realized that bowel symptoms are very common in JHS and EDS-hypermobility type. Akin to the symptoms of Irritable Bowel Syndrome, JHS and EDS patients will very often describe symptoms of:

Generalized abdominal pain,
Heartburn (acid reflux from the stomach in to the gullet),
Constipation, and

Hernias (bowel pushing through the abdominal wall) are common. Perhaps most familiar to the public is the hiatus hernia – part of the stomach squeezes into the chest through an opening in the diaphragm.

This can cause symptoms of pain, heartburn, fullness and nausea and vomiting. A hernia might also be found, for example, in the midline of the abdominal wall, around the belly button, or at the groin. Most often they present as a tender lump that might also expand on straining or coughing.

Up to 10-15% of individuals with EDS also describe a sense of urgency when needing to pass faeces; haemorrhoids (piles) or skin tears with bleeding; and may also be incontinent, soiling themselves due to the inability to control when they pass faeces.