Author Topic: Diagnostic Criteria to be revised - May 2016 International Symposium  (Read 1025 times)

Ryan Ryder

  • Guest
EDS International Symposium 2016

May 2016

The primary goal is to reclassify the diagnostic criteria for all the types of Ehlers-Danlos syndrome.

The symposium is also purposed with producing guidelines for medical professionals to use once a diagnosis has been reached as a universal guide for management.

We are excited to be working on a project that will change the lives of those with EDS.

Updated diagnostic criteria, published in medical journals across the world, will increase and improve diagnosis, and the management guidelines will finally ensure that there is an internationally agreed-on treatment plan that doctors will be unable to ignore.

http://www.ednf.org/eds-international-symposium-2016

RR

Ryan Ryder

  • Guest
Dr. Bravo, a fellow Stiff Zebra is a part of the  beighton criteria working group

http://eds2016.org/beighton-criteria-working-group/


Ryan Ryder

  • Guest
The primary goal of the symposium was to reclassify the diagnostic criteria for all the types of Ehlers-Danlos syndrome. 

Findings from the symposium will be presented at the

Global Learning Conference in July,

with the full published findings released in 2017.

There will be updated information posted on our website during 2016 for patients following the updates discovered during this collaborative process.

https://m.facebook.com/294028895335/photos/pb.294028895335.-2207520000.1463816624./10154050217830336/?type=3

...


2016 Ehlers-Danlos Society Global Learning Conference

Join the EDS community for a three day event that will empower those living with EDS.

Learn about the newest research – as presented at the 1st EDS International Symposium for medical professionals, as well as how to become an advocate in your community.

This event will feature an all new program of events, new speakers, new timing and more!

http://ehlers-danlos.com/2016-ehlers-danlos-society-global-learning-conference/


Click here to view the Schedule at a Glance:

http://ehlers-danlos.com/wp-content/uploads/EDS_2016GLC_SAAG.pdf


Link to FB Event
https://m.facebook.com/events/1002282149843658/

RR
« Last Edit: June 13, 2016, 12:13:36 AM by Ryan Ryder »

Ryan Ryder

  • Guest
The Ehlers-Danlos Society Global Learning Conference 2016
Join the EDS community for a three day event that will empower those living with EDS. Learn about the newest research – as presented at the EDS International Symposium for medical professionals which was held in May of this year.
Jul 14, 2016 02:00pm - Jul 16, 2016 03:00pm
(GMT-05:00) Eastern Time (US & Canada)
Hilton Baltimore Hotel, Baltimore, MD
Schedule:
The agenda has now been released with this year’s all new programming focused on the newest research as well as how to become an advocate in your community! The EDS documentary 'Issues With My Tissues' The Director's Cut will be shown and there will be so many opportunities to meet others in the EDS community.
Click here to view: http://bit.ly/EDSschedule2016

Hotel Information & Reservations:
The Ehlers-Danlos Society Global Learning Conference 2016 will take place at the Hilton Baltimore. The Ehlers-Danlos Society has secured a discounted room rate of $164.00 per night plus tax. Discounted room rates are available until Thursday, June 23, 2016 or until the block is filled. Please call 1-888-243-9694 and request The Ehlers-Danlos Society Conference room block to ensure you receive the discounted rate.
Children:
We are revamping our Kids & Teens Program, offered at a reduced conference rate for kids and teens between the ages of 5-17 years old!
Booking Tickets:
Registration closes on July 7th. Click here to register for the conference: http://bit.ly/EDSconferenceTickets
We look forward to seeing you in Baltimore this July for what will be one of the best Learning Conferences ever, with your participation and engagement!
For those unable to attend, the talks will be available as webinars in the weeks after the conference.

https://m.facebook.com/story.php?story_fbid=10154120685690336&id=294028895335

RR