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Messages - Emmerson Elliot

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1


Make sure you also get properly tested for coeliac disease: one blood test is NOT enough no matter what the result. 


It often gives false negatives so you always need further testing.
The second step is now a blood test to see if you have the genes for coeliac disease.
POTS linked to higher incidence of coeliac disease.

Ha et al 2016
 European Journal of Gastroenterology and Hepatology


https://www.ncbi.nlm.nih.gov/m/pubmed/27606948/

EE

2
POTS IS NOT caused by deconditioning. 
Pulmonary Circulation  2016

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5019095/



3
POTS IS NOT caused by deconditioning. 
Pulmonary Circulation  2016

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5019095/



4
POTS IS NOT caused by deconditioning. 
Pulmonary Circulation  2016

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5019095/



5
POTS IS NOT caused by deconditioning. 
Pulmonary Circulation  2016

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5019095/



6



POTS IS NOT caused by deconditioning. 
Pulmonary Circulation  2016

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5019095/



8
 

To learn more about coeliac disease and discuss diagnosis, symptoms and treatments etc there is this

Celiac/Coeliac disease study group on FB


https://m.facebook.com/groups/159840857928887



EE


9
Peer-reviewed Medical Articles / Coeliac disease linked to POTS
« on: September 14, 2017, 09:37:52 PM »


POTS  went to higher incidence of coeliac disease

2016 Med Lit


Ha et al

 European Journal of  gastroenterology and Hepatology

https://www.ncbi.nlm.nih.gov/m/pubmed/27606948/

10
Peer-reviewed Medical Articles / Celiac/coeliac disease is linked to POTS
« on: September 14, 2017, 09:36:39 PM »
POTS linked to higher incidence of coeliac disease


Ha et al 2016

 European Journal of  gastroenterology and Hepatology

https://www.ncbi.nlm.nih.gov/m/pubmed/27606948/

11
POTS def linked to higher incidence of coeliac disease

Ha et al 2016

 European Journal of  gastroenterology and Hepatology

https://www.ncbi.nlm.nih.gov/m/pubmed/27606948/

12
 Afrin et al 2017

 Successful targeted treatment of  mast cell activation syndrome with tofacitinib.

 European Journal of haematology August 2017

 Link to abstract only
(However I believe there is a link there that you can click: called patient access for access to the full article)

https://www.ncbi.nlm.nih.gov/m/pubmed/28382662/


EE

13
Empty Sella Syndrome / Re: ESS medical articles
« on: August 13, 2017, 05:29:04 AM »
Primary Empty Sella:  A comprehensive review

 Published online August 2017

 Link to abstract only

http://m.eje-online.org/content/early/2017/08/04/EJE-17-0505.abstract

14

 Barrow neurosurgical institute

 They will give you a neurosurgical second opinion on your MRI for $100 (2017)

 The website looks easy to use and I have had one very strong recommendation from someone who has used it.

 Looks like a 1-Click and upload your MRIs there 



https://www.barrowneuro.org/patients-families/get-a-second-opinion/


EE

15
Pharmacological treatment options for Mast Cell Activation Disease.
Molderings...Afrin et al 2016


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4903110/#__ffn_sectitle

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