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Topics - Emmerson Elliot

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1
Professor Claude Hamonet website -  Prof Hamonet is very knowledgeable about EDS


http://claude.hamonet.free.fr/eng/eds_hypermobility-beighton-poster-ghent.htm

2
 


Chronic fatigue syndrome is there a role for non-antidepressant pharmacotherapy?


 Link to full free article:

http://moscow.sci-hub.cc/339a7f0a8c1490f651a5c55a0c82c58e/houdenhove2010.pdf


EE

3

A classical Ehlers-Danlos  syndrome family with incomplete presentation diagnosed by molecular testing. 
Colombi et al 2017
European Journal of Medical Genetics

Link to abstract only
https://www.ncbi.nlm.nih.gov/m/pubmed/29024828/





4

A classical Ehlers-Danlos  syndrome family with incomplete presentation diagnosed by molecular testing. 

Colombi et al 2017
European Journal of Medical Genetics

Link to abstract only
https://www.ncbi.nlm.nih.gov/m/pubmed/29024828/





5
 Michael Jackson evidently had joint hypermobility

 As you can see when he is dancing

 I haven't looked into his other symptoms but here is a photo of his daughter Paris
 Smoking a cigarette by holding it between her toes
 This Evidently indicates extreme joint hypermobility

http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html

http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html



6
Living Legends / PARIS Jackson - Michael Jackson's daughter
« on: October 13, 2017, 11:48:36 PM »

 Paris Jackson smoking a cigarette with her feet
 By holding the cigarette between her toes

 Michael Jackson unquestionably had joint  Hypermobility

 
http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html

7
Ehlers- Danlos - Syndrome or Disease?


 (This looks important but I can't read it all yet)

link to full, free text


http://www.avensonline.org/fulltextarticles/jsynd-2380-6036-02-0005.html

9

KIDS with POTS/CFS/EDS/MCAD/Celiac/ tethered cord spina bifida etc

 A group for  education and support for
parents and carers of children affected by these conditions

https://m.facebook.com/groups/1946820705574668?multi_permalinks=1946821038907968&notif_t=like&notif_id=1507178688769657&ref=m_notif

10

EDS linked  to celiac disease!
Nationwide population-based cohort study of celiac disease and risk of Ehlers-Danlos Syndrome and Joint  Hypermobility Syndrome

Laszkowska et al. 2016
Digestive and liver disease
June 2016

Conclusions
"Individuals with coeliac disease have a higher risk of EDS/JHS (Ehlers-Danlos Syndrome) than the general population....."

Note: One blood test is never enough testing for coeliac disease; it very often gives false negatives. You always need to at least have the second blood test for coeliac genes as well. 


This is the link to the abstract and paywall

http://invisibleillnessforum.com/index.php?topic=939.msg1784#msg1784


11
EDS linked  to celiac disease!
Nationwide population-based cohort study of celiac disease and risk of Ehlers-Danlos Syndrome and Joint  Hypermobility Syndrome

Laszkowska et al. 2016
Digestive and liver disease
June 2016

Conclusions
"Individuals with coeliac disease have a higher risk of EDS/JHS (Ehlers-Danlos Syndrome) than the general population....."

Note: One blood test is never enough testing for coeliac disease; it very often gives false negatives. You always need to at least have the second blood test for coeliac genes as well. 


This is the link to the abstract and paywall

http://invisibleillnessforum.com/index.php?topic=939.msg1784#msg1784


12
Peer-Reviewed Medical Articles / Coeliac linked to EDS
« on: October 03, 2017, 08:42:17 PM »


Nationwide population-based cohort study of celiac disease and risk of Ehlers-Danlos Syndrome and Joint Hypermobility Syndrome

Laszkowska et al. 2016
Digestive and liver disease
June 2016

Conclusions

Individuals with coeliac disease have a higher risk of EDS/JHS (Ehlers-Danlos Syndrome) than the general population.....

Link to full, free article

https://www.ncbi.nlm.nih.gov/m/pubmed/27321543/





Link to absract only:

http://www.dldjournalonline.com/article/S1590-8658(16)30436-4/fulltext



Note: One blood test is NEVER enough testing for coeliac disease; the fist blood test very often gives false negatives and it is NO use at all if you have not been eating a good  amount of gluten every day for 4-6 weeks prior to the testing (at least 2 slices of wheat bread per day). You always need to at least have the second blood test  - the gene blood test for coeliac as well. 

 And a biopsy will not show positive results for celiac unless you have been eating at least 2 g of gluten per day for about six weeks prior to the biopsy. 
That is roughly 2 slices of wheat bread per day. 

Eating oats is insufficient to obtain accurate biopsy or blood test results.

EE





13
Nationwide population-based cohort study of celiac disease and risk of Ehlers-Danlos Syndrome and Joint Hypermobility Syndrome

Laszkowska et al. 2016

Digestive and liver disease
June 2016

Conclusions

Individuals with coeliac disease have a higher risk of EDS/JHS (Ehlers-Danlos Syndrome) than the general population.....

 Link to abstract

http://www.dldjournalonline.com/article/S1590-8658(16)30436-4/fulltext


Link to full, free article

https://www.ncbi.nlm.nih.gov/m/pubmed/27321543/
 

14
Israel-Dr Yael Gazit  comes highly recommended for EDS


paper on EDS HM Type

Yael, Jacob & Grahame 2016


https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5101008/

15
A practical guide for the treatment of pain in patients with systemic mast cell activation disease
Wirz, Molderings et al.

Pain Physician Journal 2017

Link to full, free article

http://www.painphysicianjournal.com/current/pdf?article=NDYxNQ%3D%3D&journal=107



 Link to abstract

https://www.ncbi.nlm.nih.gov/m/pubmed/28934791/

EE


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