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Topics - Emmerson Elliot

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3
Pheresis
 Apparently is one treatment for pseudo polycythaemia

https://www.medicinenet.com/script/main/art.asp?articlekey=12700

4
PseudoPolycythaemia


 When plasma volume is low making the red cell count appear high
 I possibly be related to haemochromatosis

 Mayo clinic website has a section on plasma volume testing to see if you have low blood volume


http://www.checkorphan.org/diseases/pseudopolycythaemia



 Pheresis is apparently a treatment for pseudo polycythaemia


https://www.medicinenet.com/script/main/art.asp?articlekey=12700

5
Coeliac vaccine

Phase 1 trial showing promising results

WEHI: Walter and Eliza Hall Institute, Melbourne Australia.


https://www.wehi.edu.au/news/coeliac-disease-vaccine-shows-promising-results-phase-i-trial

6
Gastrointestinal manifestations of Marfan syndrome
(Hernias, diverticulitis, IBS, etc)

2017


Link to full, free  article
https://www.preprints.org/manuscript/201711.0081/v1/download

7
Professor Claude Hamonet website -  Prof Hamonet is very knowledgeable about EDS


http://claude.hamonet.free.fr/eng/eds_hypermobility-beighton-poster-ghent.htm

8
 


Chronic fatigue syndrome is there a role for non-antidepressant pharmacotherapy?


 Link to full free article:

http://moscow.sci-hub.cc/339a7f0a8c1490f651a5c55a0c82c58e/houdenhove2010.pdf


EE

9

A classical Ehlers-Danlos  syndrome family with incomplete presentation diagnosed by molecular testing. 
Colombi et al 2017
European Journal of Medical Genetics

Link to abstract only
https://www.ncbi.nlm.nih.gov/m/pubmed/29024828/





10

A classical Ehlers-Danlos  syndrome family with incomplete presentation diagnosed by molecular testing. 

Colombi et al 2017
European Journal of Medical Genetics

Link to abstract only
https://www.ncbi.nlm.nih.gov/m/pubmed/29024828/





11
 Michael Jackson evidently had joint hypermobility

 As you can see when he is dancing

 I haven't looked into his other symptoms but here is a photo of his daughter Paris
 Smoking a cigarette by holding it between her toes
 This Evidently indicates extreme joint hypermobility

http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html

http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html



12
Living Legends / PARIS Jackson - Michael Jackson's daughter
« on: October 13, 2017, 11:48:36 PM »

 Paris Jackson smoking a cigarette with her feet
 By holding the cigarette between her toes

 Michael Jackson unquestionably had joint  Hypermobility

 
http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html

13
Ehlers- Danlos - Syndrome or Disease?


 (This looks important but I can't read it all yet)

link to full, free text


http://www.avensonline.org/fulltextarticles/jsynd-2380-6036-02-0005.html

15

KIDS with POTS/CFS/EDS/MCAD/Celiac/ tethered cord spina bifida etc

 A group for  education and support for
parents and carers of children affected by these conditions

https://m.facebook.com/groups/1946820705574668?multi_permalinks=1946821038907968&notif_t=like&notif_id=1507178688769657&ref=m_notif

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