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Messages - Emmerson Elliot

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3
Pheresis
 Apparently is one treatment for pseudo polycythaemia

https://www.medicinenet.com/script/main/art.asp?articlekey=12700

4
PseudoPolycythaemia


 When plasma volume is low making the red cell count appear high
 I possibly be related to haemochromatosis

 Mayo clinic website has a section on plasma volume testing to see if you have low blood volume


http://www.checkorphan.org/diseases/pseudopolycythaemia



 Pheresis is apparently a treatment for pseudo polycythaemia


https://www.medicinenet.com/script/main/art.asp?articlekey=12700

5
 Another excellent YouTube clip from Dr Ian Carroll,

 Professor of anaesthesiology at Stanford university

Mar 4, 2017 Dr. Ian Carroll (Anesthesiology / Pain Medicine) of Stanford University in a Q & A session on spinal CSF leak (intracranial hypotension) hosted by Spinal CSF Leak Foundation during Leak Week March 2 2017.

https://m.youtube.com/watch?v=04jSbxYdbbY&t=343s


EE


6
Bump

? Maybe celiac will belong here too soon?

7
Coeliac vaccine

Phase 1 trial showing promising results

WEHI: Walter and Eliza Hall Institute, Melbourne Australia.


https://www.wehi.edu.au/news/coeliac-disease-vaccine-shows-promising-results-phase-i-trial

8
Gastrointestinal manifestations of Marfan syndrome
(Hernias, diverticulitis, IBS, etc)

2017


Link to full, free  article
https://www.preprints.org/manuscript/201711.0081/v1/download

9
Peer-Reviewed Medical Articles / Re: Coeliac linked to EDS
« on: November 17, 2017, 09:36:15 PM »
 Coeliac vaccine trials are well on the way in Melbourne Australia


Dr Jason Tye-Din is one of the principal researchers and it seems like the vaccine is having some success from early indications

Dr Jason Tye-Din
Walter and Eliza Hall Institute
Coeliac research
https://www.wehi.edu.au/people/jason-tye-din



10
Professor Claude Hamonet website -  Prof Hamonet is very knowledgeable about EDS


http://claude.hamonet.free.fr/eng/eds_hypermobility-beighton-poster-ghent.htm

11
 


Chronic fatigue syndrome is there a role for non-antidepressant pharmacotherapy?


 Link to full free article:

http://moscow.sci-hub.cc/339a7f0a8c1490f651a5c55a0c82c58e/houdenhove2010.pdf


EE

12

A classical Ehlers-Danlos  syndrome family with incomplete presentation diagnosed by molecular testing. 
Colombi et al 2017
European Journal of Medical Genetics

Link to abstract only
https://www.ncbi.nlm.nih.gov/m/pubmed/29024828/





13

A classical Ehlers-Danlos  syndrome family with incomplete presentation diagnosed by molecular testing. 

Colombi et al 2017
European Journal of Medical Genetics

Link to abstract only
https://www.ncbi.nlm.nih.gov/m/pubmed/29024828/





14
Thanks Cairncross.
Someone kindly sent the link to the full free article so I have posted it above - this one

Nationwide population-based cohort study of celiac disease and risk of Ehlers-Danlos Syndrome and Joint Hypermobility Syndrome

Laszkowska et al. 2016
Digestive and liver disease
June 2016

Conclusions

Individuals with coeliac disease have a higher risk of EDS/JHS (Ehlers-Danlos Syndrome) than the general population.....

Link to full, free article

https://www.ncbi.nlm.nih.gov/m/pubmed/27321543/


AND it seems that people with coeliac are NOT being tested properly for EDS either - they are being dismissed by being told it is rare (it is not) or that you need stretchy skin or frequent dislocations to have EDS - not true either.)


EE

15
 Michael Jackson evidently had joint hypermobility

 As you can see when he is dancing

 I haven't looked into his other symptoms but here is a photo of his daughter Paris
 Smoking a cigarette by holding it between her toes
 This Evidently indicates extreme joint hypermobility

http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html

http://www.dailymail.co.uk/tvshowbiz/article-4913766/Paris-Jackson-smokes-cigarette-using-foot.html



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